Coexisting with COVID


Survey: COVID Long-Haulers, Newly Disabled, and Long-Time Members of the Disability Community

Share your experience and questions: Deadline August 7, 2022

COVID-19 has resulted in millions of new people with disabilities, some due to lingering symptoms of COVID that persist weeks and months after initial infection, and others from permanent damage to the body wrought by the virus.

As part of a new effort, Access Living seeks feedback and questions from people who are newly disabled, including those who may only be temporarily disabled. What information and resources would be most helpful? What barriers have you faced? What do you wish someone would explain to you?

Similarly, we seek the input, advice, and ‘hacks’ of long-time members of the disability community: What advice do you have for people who are newly disabled? What tools have you found helpful?

Tell us below.

Deadline August 7, 2022

Co-existing with COVID
Do you identify as having a disability?
Has long COVID substantially limited major life functions for you? (A substantial limitation of a life function might be caring for oneself, performing manual tasks, seeing, hearing, eating, sleeping, walking, standing, sitting, reaching, lifting, bending, speaking, breathing, learning, reading, concentrating, thinking, communicating, interacting with others, and working.)
Have you experienced brain fog as a result of long COVID?
Have you ever tried to apply for disability benefits?
What information would be most useful to you when it comes to long COVID, COVID, and/or disability?
Can we contact you about your responses to this survey?
We are gathering stories about brain fog from those with lived experience. Can we contact you directly to talk to you about brain fog and long Covid?
Can we contact you directly to hear your thoughts on mask-wearing for COVID-19 prevention?
What is your preferred method of communication?