The Voices of Home Services in Illinois

New Report compiles stories from people who will be impacted by budget cuts

In this message, the Director of Advocacy talks about a new report from Health and Disability Advocates, which compiles the testimony from people who will be directly impacted by a raise in the Determination of Need Score


Sometimes it can feel as though the state budget crisis exists in a place that is accessible only to powerful policy makers. The truth is that the state budget crisis is only too real and affects hundreds of thousands of people with disabilities and others throughout our state. The real voices of real people matter only more and more as each week passes without a budget solution.

The 10,000 people with disabilities and 24,000 seniors whose home services are at risk of being cut through the DON score change are not a dream or a fantasy. They are only too real. Thanks to Health and Disability Advocates , there is a new easy to use document that compiles the real voices of real people who would be affected by changing the DON score from 29 to 37. The report, “Cutting Services, Eliminating Independence: What Changes to the DON Score Will Mean for Illinoisans,” communicates the human cost of the change by sharing the personal stories of people who would be directly impacted. To read the report, please visit this link .

As a brief reminder of the issue at hand, the health, well-being and independence of people in the Community Care Program (CCP) and Home Services Program (HSP) are at risk because the State has proposed a change to the minimum eligibility threshold for the Determination of Need (DON) assessment. At this moment, Governor Rauner has at his desk HB 2482, the bill to preserve the DON score. It is up to him to decide whether to sign or veto the bill.

We urge you to check out the report and share it with everyone you know. Please let the Governor’s office know that people with disabilities and seniors are counting on him to sign HB 2482 by calling his Chicago office at (312) 814-2121 or his Springfield office at (217) 782-0244. Real people are counting on your help to remind the Governor each week that lives are hanging in the balance.

Amber Smock
Director of Advocacy, Access Living